Welcome to my humble blog about Living and Coping with Myasthenia Gravis from a patient’s perspective. Through my own Myasthenia Gravis story, I’ll share tips for dealing with MG, including information on treatments, with symptom descriptions “from the inside.” I’ll touch on benefits and pitfalls of the medicines and approaches I’ve tried since my long sought diagnosis in 2009. I’ll also pepper in a little of my own art as part of a HUGE encouragement for sufferers to distract themselves away from illness as much as possible. We are all more than our illness, so long as we believe it ourselves. I hope my general story will help widen the somewhat narrow amount of information available online about the disease for patients’ and caregivers’ sake. I wish to instill hope in others diagnosed with Myasthenia Gravis (and their caregivers) they are not alone.
If you’ve had this treatment suggested for Myasthenia Gravis, it’s likely that lesser treatments are failing you. Typically, Mestinon and / or steroids might not work, or be outruled. This treatment can be a big step for MG patients, as it requires a hospital stay for the blood antibody serum infusion. Thoughts of chemotherapy may come to mind. Scary! Here I will outline my experience undergoing the initial IVIG introduction, and give pointers for getting through follow up treatments.