Living with Myasthenia Gravis from a Patient's Perspective Blog - Patient information, tips, and tricks for coping with the disease.

Welcome to my humble blog about Living and Coping with Myasthenia Gravis from a patient’s perspective.  Through my own Myasthenia Gravis story, I’ll share tips for dealing with MG, including information on treatments, with symptom descriptions “from the inside.” I’ll touch on benefits and pitfalls of the medicines and approaches I’ve tried since my long sought diagnosis in 2009. I’ll also pepper in a little of my own art as part of a HUGE encouragement for sufferers to distract themselves away from illness as much as possible. We are all more than our illness, so long as we believe it ourselves. I hope my general story will help widen the somewhat narrow amount of information available online about the disease for patients’ and caregivers’ sake. I wish to instill hope in others diagnosed with Myasthenia Gravis (and their caregivers) they are not alone.

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Handmade Shop ^^ Pssssssssstttt…… I have a cool handmade jewelry and original art shop too! Art therapy, folks. Wouldn’t be alive without it. 

Melasdesign - Artist Susan Hicks - Blog Introduction

Forced Restart

I’m still here. An Introduction. By way of introduction, let me say a bit about myself. My name is Susan. I’m an artist with a

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A recounting of Myasthenic Crisis - Living with Myasthenia Gravis

Myasthenic Crisis – A Personal Recollection

On May 1 I had my first ambulance ride, rescued during Myasthenia Crisis. I’ve been inspired to share Myasthenia Gravis information from a patient’s perspective in this blog. My myasthenic crisis story and blog kick-off follows.

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Living with Myasthenia Gravis Blog - Things to Know About IVIG - Melasdesign Blog - Susan Hicks

What to Expect During IVIG Induction Treatment

If you’ve had this treatment suggested for Myasthenia Gravis, it’s likely that lesser treatments are failing you. Typically, Mestinon and / or steroids might not work, or be outruled. This treatment can be a big step for MG patients, as it requires a hospital stay for the blood antibody serum infusion. Thoughts of chemotherapy may come to mind. Scary! Here I will outline my experience undergoing the initial IVIG introduction, and give pointers for getting through follow up treatments.

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