Artist Susan Hicks Blog | Living through Myasthenia Gravis with Art

Blog in Two Parts: Melasdesign Art blog and “Living with Myasthenia Gravis” blog from artist and MG patient Susan Hicks.

Living with Myasthenia Gravis Blog - Things to Know About IVIG - Melasdesign Blog - Susan Hicks
Living with Myasthenia Gravis

What to Expect During IVIG Induction Treatment

If you’ve had this treatment suggested for Myasthenia Gravis, it’s likely that lesser treatments are failing you. Typically, Mestinon and / or steroids might not work, or be outruled. This treatment can be a big step for MG patients, as it requires a hospital stay for the blood antibody serum infusion. Thoughts of chemotherapy may come to mind. Scary! Here I will outline my experience undergoing the initial IVIG introduction, and give pointers for getting through follow up treatments.

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I Repeat - Melasdesign Blog- Philosophy of Kindness - self portrait, artist, surviving Myasthenia Gravis with art
Visionary Art from Melasdesign

The Philosophy of Kindness

Look at my self portrait. What is this philosophy of kindness? Perhaps it was how I was raised, or my late mother’s genes, but one thing I always try to do is see the good in others. I do my best to be kind and helpful when I am in the position to, even with folks I may only encounter once. I have met many wonderful people this way. Usually kindness is returned, even if only through a smile that tells everything.

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The Long Road to Diagnosis - Myasthenia Gravis - Blog
Living with Myasthenia Gravis

The Long Road to Myasthenia Gravis Diagnosis

A Myasthenia Gravis patient’s 20 year trek to get a correct MG diagnosis, including examples of misdiagnosis, descriptions of diagnostic tests, symptoms, and personal recollections of dealing with the slow process.

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Melasdesign Halloween DIY Outdoor Witch Scene Blog - Wyrd Sisters - Homemade
Visionary Art from Melasdesign

When Halloween Got Wyrd

It’s nice to meet someone who loves Halloween as much as yourself. It’s also great if they too have dreamed of creating a DIY, homemade Halloween yard display. Better still if they are a gifted creator. Fantastic if their talents work complimentarily to your own. This was the experience which ultimately led to a magical Halloween featuring a staging of Terry Pratchett’s Wyrd Sisters, witches from literature.

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Living with Myasthenia Gravis Blog - Nearing Myasthenic Crisis blog cover from Living with Myasthenia Gravis first hand blog
Living with Myasthenia Gravis

Near Myasthenic Crisis

On May 1 I had my first ambulance ride, rescued by EMS, nearing Myasthenia Crisis. I’ve been inspired to share Myasthenia Gravis information from a patient’s perspective in this blog. My “too close to myasthenic crisis” story and blog kick-off follows.

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