I’m still here. An Introduction.
By way of introduction, let me say a bit about myself. My name is Susan. I’m an artist with a Myasthenia Gravis diagnosis. MG is a not so widely recognized neurological autoimmune disease / disorder, which can leave muscles from head to toe unable to function due to nerve communications being blocked by the body “attacking itself.” Current medical articles state, in paraphrase, “was named Myasthenia Gravis because it was usually fatal in the past, but isn’t usually, in the present, with success of modern medicine. With this blog, I am taking advantage of life after Myasthenic crisis. In April, 2018 I had my first deep crisis. The Gravis almost did become grave. Myasthenic crisis hits hard.
The Usual was Almost Unusual.
The “formerly grave” thing sounds good, huh? On that April morning, before sunrise, I only awakened because of needing to go to the loo. Otherwise, I’d have likely slipped into the great beyond, being already a tad too close to being there already. The disease is not what defines me, but in away, this forced restart has. This is my re-introduction to life after myasthenic crisis.
Coping with Myasthenia Gravis Through Art
Art, in and of itself, speaks for the need of original creation and expression of unique abilities and points of view. While Myasthenia Gravis can be “a curse,” it has also widened my realm of personal experience and given me points of view I likely would not have otherwise had. My crisis experience helped instill my resolve to go forward with my life no holds barred.
As my nerves and muscles allow me, I will create and post art. This is what defines me anew, every time I put color to surface, every time I shape new objects. This is what I am. This is what quite a few people have scoffed at or denied any credence to throughout my life.
Art is slipping away from us; from social elitists who bar art and music from public education, or sanctions that make art museums unapproachable for the high price of entry, to anyone who treats creativity as a dangerous thing, only accepting creativity for the purpose of business or institution. It is free thought, after all. I only started making headway once I developed resolve in just not listening to these controlling haters, and I am all the better for it.
And so it begins.
After sputtering starts at blog writing over the past few years, with new found strength and resolution, I will build on the humble success I’ve recently found as an artist, while also dealing with the trials and tribulations I’ve had in getting here. And I’ll also write of the joys and triumphs I’ve had. I’ll showcase where I’m at, and where I hope to go in the future. I will explain more about Myasthenia Gravis, because there are plenty of other sufferers who probably get tired of having people have no idea at all about their disease, *especially* when sufferers can appear so normal. I will cautiously illustrate what’s gotten me through, while also touching upon the drawbacks and pitfalls of the modern US health system.
Read on and subscribe. We’ll see how this life develops.