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Living with Myasthenia Gravis from a Patient's Perspective Blog - Patient information, tips, and tricks for coping with the disease.

Welcome to my humble blog about Living and Coping with Myasthenia Gravis from a patient’s perspective.  Through my own Myasthenia Gravis story, I’ll share tips for dealing with MG, including information on treatments, with symptom descriptions “from the inside.” I’ll touch on benefits and pitfalls of the medicines and approaches I’ve tried since my long sought diagnosis in 2009. I’ll also pepper in a little of my own art as part of a HUGE encouragement for sufferers to distract themselves away from illness as much as possible. We are all more than our illness, so long as we believe it ourselves. I hope my general story will help widen the somewhat narrow amount of information available online about the disease for patients’ and caregivers’ sake. I wish to instill hope in others diagnosed with Myasthenia Gravis (and their caregivers) they are not alone.

Living with Myasthenia Gravis Blog - Nearing Myasthenic Crisis blog cover from Living with Myasthenia Gravis first hand blog

Near Myasthenic Crisis

On May 1 I had my first ambulance ride, rescued by EMS, nearing Myasthenia Crisis. I’ve been inspired to share Myasthenia Gravis information from a patient’s perspective in this blog. My “too close to myasthenic crisis” story and blog kick-off follows.

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Living with Myasthenia Gravis Blog - Things to Know About IVIG - Melasdesign Blog - Susan Hicks

What to Expect During IVIG Induction Treatment

If you’ve had this treatment suggested for Myasthenia Gravis, it’s likely that lesser treatments are failing you. Typically, Mestinon and / or steroids might not work, or be outruled. This treatment can be a big step for MG patients, as it requires a hospital stay for the blood antibody serum infusion. Thoughts of chemotherapy may come to mind. Scary! Here I will outline my experience undergoing the initial IVIG introduction, and give pointers for getting through follow up treatments.

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Patient Story and Advice Blog Living with Myasthenia Gravis through Art post titled

Caregiver Guidelines for Myasthenia Gravis

Interested in better caregiving for those with Myasthenia Gravis (or even yourself)? This disease is better not faced alone, and caregivers may not know what a diagnosed person is going through. It’s an invisible disease that is not very commonly known, so read on for my informative tips on Myasthenia Gravis care. The emphasis of this blog post is general advice in caring for someone with Myasthenia Gravis with minor to medium levels of symptoms written by someone who has the disease themself.

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